Life With Endometriosis

 

Imagine waking up in the middle of the night, hardly being able to move and being in unbelievable pain. You go to the ER, they perform ultra sounds and other invasive test, than being told you are fine and this pain may be in your head. This is what happened to me at 12 years old. It would be 10 years later when I would be diagnosed with endometriosis.   This month is national Endometriosis month. I have had this disease for most of my life. Today I will talk about how not only it affects my family and me but also what it is, and who is effected.

First what is endometriosis? According to the mayo clinic, it is tissue that is normally in the uterus however it instead grows on the outside of the uterus.[1]

If you think that this is a rare you might be surprised to learn that 1-10 women are diagnosed with Endo. That is over 176 million women in our world who, have this terrible autoimmune disease! [2]

 

To my understanding one of the only ways to really being diagnosed with endometriosis is through surgery. This is how I was diagnosed, after having a cyst on my right ovary. It was done through a laparoscopic surgery to biopsy my cyst. My than doctor discovered the reason behind all the pain I was suffering was because of endometriosis.

 

Instead of giving you a whole history of how this has effected my life. I will share my last month you. It started with typical cramps, that progressively got worse and worse. It got to the point where I needed medical help. I am now slowly getting back to what my normal is. However it has not only affected me but my family.

In the last month I have messed two weeks of work. I have anxiety that family and friends won’t believe me. I feel terrible for not being able to keep up with my commitments.   I missed out on family outings, because I couldn’t be there. However some benefits have been we finally found a doctor who gave us some ideas on how to treat my endometriosis.

 

I have three options that best fit my family right now. I can have another laparoscopic surgery, I can take a new pill that has come out that will clear out everything, or I can get pregnant.

 

Choice #1

I have had the surgery before which helped me out a ton! However this was only temporary.

Choice #2

I can take this new pill. I have looked into this pill and even though it has helped many women, I feel it is not a fit for me based on the side effects.

 

Choice # 3

Getting pregnant. This one makes me laugh. Only because my husband and I have been trying for over 12 years to get pregnant. However after looking into our benefits this is our best option. So currently we are interviewing fertility specialist. Now I will add that getting pregnant does make endometriosis go away but only for about 18 months before it returns.

 

 

 

If you are in pain and have endometriosis, you are not alone. There are millions of us. If you have never heard of endometriosis, thank you for taking your time to learn my story. The more understanding there is in this crazy world the more we can look for better cures and knowledge of why this condition exists.

 

 

 

 

 

 

Sources

[1] Mayo Clinic Staff. “Endometriosis.” Mayo Clinic, Mayo Foundation for Medical Education and Research, 24 July 2018, www.mayoclinic.org/diseases-conditions/endometriosis/symptoms-causes/syc-20354656.

 

[2] Endometriosis.org. “About Endometriosis « Endometriosis.org.” Endometriosis.org, endometriosis.org/endometriosis/.

 

8 thoughts on “Life With Endometriosis

  1. Sending you some ❤️ and fertility luck. Prayerfully you’ll have your baby and endo won’t be an issue for you.

    Angel | Mommy-ing Differently

  2. I have endo too. I was reading study that melatonin helps as does ginger. I haven’t started the ginger but the melatonin is helping a bit. I’m sorry you dealing with this because endo sucks.

  3. While I experience 3 miscarriages and infertility I met many women with endometriosis. It’s such a rough journey. Have you come across the Beat Infertility podcast? If not I think you would just love it. Heather, the podcaster has a pretty incredible journey, including endo.

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